National Care Experience Programme update

National Care Experience Programme logo

Over the past few weeks, we have launched a new podcast, published a report on the experiences of people with a tumour or cancer, and are preparing to launch a new survey on experiences of maternity bereavement care.

The National Care Experience Programme is a partnership between HIQA, the HSE and the Department of Health.

Let’s Talk Care Experience podcast

We have launched a new podcast called Let’s Talk Care Experience which aims to give the people who use and work in Irish health and social care services the opportunity to share their experiences.

In episode 1, Phelim Quinn, HIQA CEO; Paul Reid, HSE CEO; Karen Greene, Deputy Chief Nursing Officer in the Department of Health; and Phyllis McNamara, patient representative with the Saolta University Healthcare Group; talk about the importance of listening to the people using healthcare services in Ireland.

In episode 2, Jennifer Feighan, CEO of the Irish Nutrition and Dietetic Institute, and Laura Brennan, Senior Dietitian in St James’s Hospital, speak about the impact of food and nutrition on patients’ experience.

The podcast is hosted by Tracy O’Carroll, Senior Manager of the National Care Experience Programme.

Listen to the podcast on yourexperience.ie, or find it on Apple Podcasts and Spotify. Subscribe to the show where you listen to your podcasts, so you can get all new episodes as soon as they are available.

The National Maternity Bereavement Experience Survey

The first National Maternity Bereavement Experience Survey in Ireland will commence in February 2022.

The survey was developed in partnership with stakeholders, including bereaved parents, healthcare professionals, representatives of bereavement support organisations, special interest groups, and policy-makers. It was also informed by a national review of maternity bereavement care and services, a systematic review of international maternity bereavement survey programmes, a Delphi study and cognitive interviews.

The National Maternity Bereavement Experience Survey will ask women who experienced a second trimester miscarriage, a stillborn infant or the early neonatal death of a baby in any of Ireland’s 19 maternity units or hospitals between 1 July 2019 and 30 June 2020 about their experiences of maternity care. All women with a postal address in the republic of Ireland, who were 16 years or over at the time of their loss and bereavement care. It will ask about their experiences of diagnosis, communication, inpatient care, bereavement care, post-mortem examination and follow-up care, along with a section to capture the experiences of a partner or support person.

The survey aims to learn from the experiences of women and their partners or support person in order to improve the safety and quality of bereavement care for parents who experience pregnancy loss.

Find out more about the survey here.

The National Inpatient Experience Survey

We published a report on the experiences of 1,100 patients whose main reason for attending hospital was a tumour or cancer diagnosis. These patients took part in the National Inpatient Experience Survey 2019.

The majority of patients who were admitted for a tumour or cancer reported positive experiences in hospital, with 88% saying they had a good or very good overall experience. Patients admitted for a tumour or cancer gave similar or more positive ratings for all questions on the survey compared to patients admitted for other reasons, with the exception of hospital food, which was rated lower by patients admitted for a tumour or cancer.

Read the report in full here.

In October, over 26,000 patients were invited to take part in the 2021 National Inpatient Experience Survey. All patients aged 16 and over who spent 24 hours in one of Ireland’s 40 public hospitals during the month of September 2021 are eligible to participate in this survey.

The results of the survey will be published on www.yourexperience.ie in 2022. Sign up here to be notified when the results are out.